Happy Heart Day Mylah!!!!!

I remember my nerves being on edge waiting for the word; Good or Bad. Praying that God surrounded the room and blessed every hand that would be touching hers. Trying hard to keep it together on the outside, but falling apart on the inside.  Being amongst other families; witnessing how it all came crashing down when bad news came. Watching the tears fall, and the heads shake in disbelief. What would our outcome be?

Mylah was only 3 months old and just under 7lbs. We worked hard to help her gain as much weight as possible, because it would only help her sustain.  Had we done enough? Did we make the right decision? What if the naysayers were right?

I was agony for hours and hours.  I tried to make my mind wander but it stayed. As darkness came, my anxiety increased; it dove deeper into the pits of my stomach and tugged on my faith.  I felt weary, like I just finished running a marathon. I wanted to go as far away as I could but I couldn't leave her. We were in this together.

The doctor emerged. All night I watched families go into this door and come out with their lives changed. Some for better, others needed more prayers.

"Surgery went well" Dr. Ohye said to us.  Each person with us rejoiced. Hugs were given, praises went up. We were all so grateful.

HE was there. Once again I saw one set of Footprints. HE had carried us through. Most importantly HE answered my prayers.

July 5, 2012 will forever be one of the most important dates in my adult life.

My Trisomy 18 daughter underwent open heart surgery and survived.

So much has happened in the last 3 years. We have had good times and bad. We still have a long way to go but today I'm happy to be celebrating her victory once again.

Mommy seeing her HERO for the 1st time post surgery..... Amazed at her strength 7-5-12

So small, but so STRONG! 7-5-12

3 years LATER

Such a pretty little girl..... 7-5-15

Happy Heart Day MYLAH!!! 7-5-15