Wednesday, August 28, 2013

This Journey…..

started out very uncertain.  On October 19, 2011 my whole life changed. Some would argue that it changed for the worse but that's their opinion.  We've seen more good days than bad days, & like the song says…. I won't complain.

We were basically guaranteed that Mylah wouldn't be here today.  We were made to think that she wasn't worth fighting for. I'm so glad that I know a GOD who answers prayers because doctors don't know everything.

I've contemplated since Mylah's birth, how I planned to follow up with the hospital about this wonderful little girl who is LIVING with Trisomy 18.  I've had many ideas. A few weeks ago, while at work the idea came to me.

We never traveled this journey alone. We had GOD, our families, friends, and made new friends who have supported us along the way.  I'm always told how Mylahs journey has affected the lives of our many supporters. So, I decided that we would show the hospital how this life, that was deemed so worthless is valued by many more people than just 2 parents who refused to take "no" for an answer.

YOU, yes, YOU can take part in this memorable moment.

See the video below and I hope you participate.
video


I really do think that this could make a huge impact on the hospital's policy. 

If you wish to send me your statement, you can send it to

Shaniperk@gmail.com

I will accept statements until October 1, 2013. 

Thank you to all who will participate with us! 


Monday, August 26, 2013

Chicago….

was the destination for Mylah's 1st trip.

We visited The Windy City this weekend and everything was great. I didn't plan too much because I wasn't sure how Mylah would be away from home, but she had a blast.  She spent the weekend smiling, laughing, talking and just enjoying being away from home.

It was like she knew that she was on her 1st trip.

Friday we walked the Magnificent Mile. We did some shopping for Mylah and walked down Michigan Ave.  I wanted to go to the observatory in the John Hancock building but someone didn't want to go because it was too far up. LOL.

Saturday, we walked to the Navy Pier and spent Mylah's 17 month birthday on Lake Michigan. Sunny, warm and not a cloud in the sky. The view was BEAUTIFUL, and Mylah just chilled out in her cool sunglasses.

One of my dear friends came to visit us and she spent some quality time with Mylah.
I love when I can have conversations about LIFE & the person just gets me. I thank her for our conversation this weekend. I was able to express some things that I haven't expressed to anyone and I love her for that comfort.

Mylah has been doing pretty good. Aside from something going on with her eyes, she's been doing great. We go to the vent clinic next month to see what the next step; if any, will be. Praying for good news.

In the next few days I will be blogging about a project that is very near and dear to my heart. I hope all who know about our story will participate.

Dad checking the diaper for a surprise

Her very own bed….


Mylah and Mommy at dinner

"How far up is it again?"

I LOVE city lights at night

Mylah's HOme away from home

We travel with everything!


Sleeping Beauty...

CHilling!

THe ROnald McDonald House in Chicago-Just passing by 

Navy Pier

Mylah & Mommy at the Navy Pier

Mylah & Daddy's first time on a boat…  
CHICAGO

Mylah waving to everybody- LOL

Mylah paying homage to Chicago's own Michael Jordan… LOL

Auntie Wynter gets a smile


Mylah sleeping on the Magnificent Mile