Friday, they posted that interview to their website.
Here is the link. Survivor Story.. A Mother's Miracle Baby....
Little Miss Mylah is becoming quite the celebrity...
Also, here are some corrections to the story and some points I wish to clarify just in case there is any confusion.
Walk With Me is a Pediatric Palliative Care program that shifts to Hospice should you need it. They were NEVER negative. They have proved to be a great resource for us. I was initially skeptical of meeting them, but once I saw that they wanted to support us and were very positive I was glad that we did meet. The hospital had explained that it was hospice and never informed me that it was a pallitive care program.
Juwan and I attempted to get pregnant for 2 years not three.
The OBGYN that the story speaks about is the maternal-fetal specialist physician from the hospital where I delivered, NOT my obgyn. She was VERY supportive in everything I wanted.
My sister Toya and I went through 4 weeks of training at the hospital for Mylah's ventilator and trach, not Juwan. He trained on weekends when he didn't have to work.
I prefer that you go to the SOFT website for information about Trisomy 18. I did not find the Trisomy foundation (where the story links) to be very positive or supportive of me and my situation. They are not an organization that I support personally because I feel that they do not promote LIFE.
Since the interview Mylah has learned to talk over her trach, we are able to hear her voice now.
Overall I am very happy with the story that was written and I hope it brings awareness to Trisomy 18.