Update on Mylah....
Currently, she is stable & back on the ventilator, Versed & Morphine. She is fighting the tube (which I'm told is good). She has a fever of 102 so they are working to bring that down. There are 3 possibilities as to what happened, but the staff here is very baffled because other than her dependence on the nasal oxygen she seemed to be progressing well and then all of a sudden came this rapid decline.
Mylah could possibly have a viral infection which they are trying to determine by doing blood cultures. She's been given Tylenol for her fever and they've unwrapped her and placed a cold towel on her head to try and cool her down.
Possibility #2 -She aspirated her feed from earlier yesterday. This may have blocked her airway and created this issue last night. She also hadn't had a bowel movement since Sunday so its apparent that she's having trouble digesting her food and over the Sunday we noticed a lot of reflux in her feeding tube.
Last and the one I'm praying it's not- Her Trisomy 18. There is a small possibility that because of her T18 her brain may not be telling her body how to breathe properly. I'm not claiming this one.
Due to the fever I'm praying the infection is the source of our current issue.
Nevertheless, we must start all over.
The words that I need to say are really stuck because my thoughts are very cloudy right now so I won't try to type of this long drawn out blog entry today.
Simply stated... we need all the prayers we can get.
Thank you all!!