Strong Little Warrior.....
Mylah's heart defects were repaired and now she is on he road to recovery. Mylah is a little fighter. Seeing her with all the machines and the tubes is heartbreaking, but I know it's just temporary. I expect her home in no time. I can't wait for the day I get to hold her again.
Mylah is in what they call the "Bay" it's a circular open room with other pediatric cardiac patients. It's a dose of reality. While people are going about their everyday lives; shopping, working, going to school, here there are families; mothers, fathers, sisters, grandparents who have set up living quarters in the ICU. Rotating bedside shifts next to their loved one. Praying for a speedy recovery. Decorating their rooms/windows with items for their relative.
The "bay" is also full of noise.. beeping from machines monitoring her blood pressure. Pumping noises, from the machines that automatically dispense medications through syringes the size of turkey basters (Mylah has 10). Humming from the ventilator that is breathing for Mylah as she rests. Then there is the periodic alarms that blare from the machines when something is either too high or too low. The "bay" is not a fun place to me. It's completely overwhelming. The reality of what's happening in this large circular shaped room causes you to step back and be thankful for what you've been given. Although, I know Mylah's issue is severe there is always babies that are worse than her and I have to remind myself of that.
No parent wants to be in this room. No child either. Each patient has been operated on and most aren't any bigger than Mylah, some actually seem smaller. Each child here is a fighter and is stronger than I could ever be. I'm really glad that the full repair has taken place. I know I couldn't have handled this situation twice.
Today (7-7) she's being weaned off her her paralytic medicines. She coming out of her sedation and they are slowly lowering her dependence on the ventilator. She's been moving and getting excited when you talk to her or touch her causing her blood pressure to increase a little. She still must rest. She's a little swollen but I actually thinks she looks the size that a 3 month old should be. Each time I look at her I am in awe of her determination and strength. I admire her drive and I just can't believe the things she's been through in her 3 month life so far.
Now we are on the road to recovery. I ask that you continue to pray for our baby and her strength and pray for us as well.
Thank you all for your prayers, phone calls, text messages, words of encouragement. Mylah has touched so many lives thus far and I'm pretty sure she has much more work to do in the future.
|Mylah & her wolverine... 7-7-12|