Strong Little Warrior.....
That's what Mylah is. Each time I feel like I don't know how much more I have in me, I look at her and I'm reminded that if my 7lb 1oz 3 month old baby girl can endure a heart surgery then surely I can handle anything that comes my way.
Mylah's heart defects were repaired and now she is on he road to recovery. Mylah is a little fighter. Seeing her with all the machines and the tubes is heartbreaking, but I know it's just temporary. I expect her home in no time. I can't wait for the day I get to hold her again.
Mylah is in what they call the "Bay" it's a circular open room with other pediatric cardiac patients. It's a dose of reality. While people are going about their everyday lives; shopping, working, going to school, here there are families; mothers, fathers, sisters, grandparents who have set up living quarters in the ICU. Rotating bedside shifts next to their loved one. Praying for a speedy recovery. Decorating their rooms/windows with items for their relative.
The "bay" is also full of noise.. beeping from machines monitoring her blood pressure. Pumping noises, from the machines that automatically dispense medications through syringes the size of turkey basters (Mylah has 10). Humming from the ventilator that is breathing for Mylah as she rests. Then there is the periodic alarms that blare from the machines when something is either too high or too low. The "bay" is not a fun place to me. It's completely overwhelming. The reality of what's happening in this large circular shaped room causes you to step back and be thankful for what you've been given. Although, I know Mylah's issue is severe there is always babies that are worse than her and I have to remind myself of that.
No parent wants to be in this room. No child either. Each patient has been operated on and most aren't any bigger than Mylah, some actually seem smaller. Each child here is a fighter and is stronger than I could ever be. I'm really glad that the full repair has taken place. I know I couldn't have handled this situation twice.
Today (7-7) she's being weaned off her her paralytic medicines. She coming out of her sedation and they are slowly lowering her dependence on the ventilator. She's been moving and getting excited when you talk to her or touch her causing her blood pressure to increase a little. She still must rest. She's a little swollen but I actually thinks she looks the size that a 3 month old should be. Each time I look at her I am in awe of her determination and strength. I admire her drive and I just can't believe the things she's been through in her 3 month life so far.
Now we are on the road to recovery. I ask that you continue to pray for our baby and her strength and pray for us as well.
Thank you all for your prayers, phone calls, text messages, words of encouragement. Mylah has touched so many lives thus far and I'm pretty sure she has much more work to do in the future.
Mylah's heart defects were repaired and now she is on he road to recovery. Mylah is a little fighter. Seeing her with all the machines and the tubes is heartbreaking, but I know it's just temporary. I expect her home in no time. I can't wait for the day I get to hold her again.
Mylah is in what they call the "Bay" it's a circular open room with other pediatric cardiac patients. It's a dose of reality. While people are going about their everyday lives; shopping, working, going to school, here there are families; mothers, fathers, sisters, grandparents who have set up living quarters in the ICU. Rotating bedside shifts next to their loved one. Praying for a speedy recovery. Decorating their rooms/windows with items for their relative.
The "bay" is also full of noise.. beeping from machines monitoring her blood pressure. Pumping noises, from the machines that automatically dispense medications through syringes the size of turkey basters (Mylah has 10). Humming from the ventilator that is breathing for Mylah as she rests. Then there is the periodic alarms that blare from the machines when something is either too high or too low. The "bay" is not a fun place to me. It's completely overwhelming. The reality of what's happening in this large circular shaped room causes you to step back and be thankful for what you've been given. Although, I know Mylah's issue is severe there is always babies that are worse than her and I have to remind myself of that.
No parent wants to be in this room. No child either. Each patient has been operated on and most aren't any bigger than Mylah, some actually seem smaller. Each child here is a fighter and is stronger than I could ever be. I'm really glad that the full repair has taken place. I know I couldn't have handled this situation twice.
Today (7-7) she's being weaned off her her paralytic medicines. She coming out of her sedation and they are slowly lowering her dependence on the ventilator. She's been moving and getting excited when you talk to her or touch her causing her blood pressure to increase a little. She still must rest. She's a little swollen but I actually thinks she looks the size that a 3 month old should be. Each time I look at her I am in awe of her determination and strength. I admire her drive and I just can't believe the things she's been through in her 3 month life so far.
Now we are on the road to recovery. I ask that you continue to pray for our baby and her strength and pray for us as well.
Thank you all for your prayers, phone calls, text messages, words of encouragement. Mylah has touched so many lives thus far and I'm pretty sure she has much more work to do in the future.
 |
| Mylah & her wolverine... 7-7-12 "GO BLUE" |
I can't say that I know how you feel but I can say that I admire your family. Your baby girl is strong and precious. When I see a picture of her I smile. Thank you for allowing us to go on Mylah's journey with you.
ReplyDeleteI was disappointed not to visit with my mom but maybe when Myndi moves we can hit both of you! :)
ReplyDeleteGrace Smith
I thank God for Mylah's healing. I also thank God for you and your family. You are a strong woman that God is using to glorify His name. The testimony that you, your husband and Mylah will have will be so mind blowing people will have no other option but to honor God. All of this is in divine order. We say God, why me, He says why not. Mylah's journey is touching so many lives. You have people praying for Mylah across the world that you don't even know. Relationships are mending, God is being honored, hearts are being changed all because of Mylah. The pictures you post of her are priceless. I cry everytime I look at her because she is so beautiful. God knew he wanted to use Mylah for His glory that's why the timing had to be perfect for you to conceive, because you had to be mature enough mentally to be able to realize you must trust God through it all. He hears you and is going to heal Mylah. She is an angel on earth doing God's work and through this, He will get the glory. God is going to heal Mylah fully and you and your husband can tell her of the miracle that she is. She will do great works, train her up in the Lord. You are a strong woman and mother. You stay strong, stay prayerful, and keep glorifying God. I am touching and agreeing with you every step of the way. Blessings, blessings, and more blessings be unto Mylah and her parents.
ReplyDelete