Psalm 32:8....
"I will instruct you and teach you in the way you should go; I will counsel you and watch over you" (NIV).......
"Don't
ask GOD to direct your path if that's not what you mean....when he
shows you the way to go don't ignore it... I learned that today. I hear
you LORD."
This is what I posted as my Facebook status yesterday after leaving the hospital for what we thought would be a day of pre-op appointments for Mylah. We arrived at the hospital for our 8:45 a.m. appointment. As usual she was weighed and measured. Initially, we were told that she would have another echo cardiogram but that she would have to be sedated. I was really worried because Mylah hasn't had to be sedated for anything thus far. Right before her echo we were told that sedating her wasn't something that her cardiologist wanted to do. What a relief! Although, she tossed and turned throughout the entire procedure she was fully aware of what was going on and she made sure that we knew how upset she was! She also had her usual EKG. During her cardiology consult we were told that her echo images were pretty much the same. No closures of the holes... so nothing would change the plan that we had for surgery. We were given a list of other things to do to prepare for her Thursday surgery; labs, pre-surgery check in, and we would meet the surgeon who would do the pulmonary artery banding (PAB).
Mylah was pretty irritated the entire day. She had been poked and prodded on since that morning. Our last appointment of the day was to meet her surgeon. Our family and friends had been paying for this person. The one who would operate on Mylah. We wanted the person to be GOD fearing, compassionate, understanding, and most of all someone who would treat Mylah like the precious baby she is.
He entered the room where we waited; waiting to discuss what would happen during Mylah's Pulmonary Artery Banding. How would he operate? How long would it take? What was the estimated recovery period? That's what I wanted to discuss.
He wanted to discuss options..... I thought "Options?" I thought we'd already made our decision. I really wasn't in the mood to discuss options. I didn't want to make anymore decisions! He began to explain... I heard the words "surgery", "banding", "o2 levels too low", "not effective", "open heart-full repair", "nothing at all"...
I felt like we were back at square one.
Mylah's last clinic visit showed her oxygen levels in the low 80's and it took a while to get there I remember. The surgeon explained that because she was already low and the banding was something that would make her levels lower, he felt the pulmonary artery banding wouldn't be effective for Mylah. It wouldn't help her any. So we had 2 options; do nothing... or full open heart surgery to repair all the defects. When we decided on the PAB surgery we knew that Mylah would eventually would have to undergo open heart surgery to repair the holes in her heart, but we wanted her to have time to get stronger & gain a little more weight. Now we needed to make another decision. You could tell that all the energy had been sucked out of the room. It was a complete shock for everyone. Mylah's Walk With ME nurse Kim spoke up, because she knew what we were thinking.
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