10.
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️ 10 years ago we entered C.S. Mott Children's Hospital scared out of our minds. We were preparing to hand our daughter over to the staff to perform what we prayed would be life saving open heart surgery. She was just over 7lbs and a little over 3 months old. We had been assured months prior by another hospital that Mylah’s life wasn’t worth the repair because of her Trisomy 18 diagnosis. We were told she most likely wouldn’t make it to birth, and if she did her life would be short -not even a year. We were assured that she wouldn’t ever know us or smile. I’ll never forget the pain that statement brought. When Mylah was born alive and the minutes of her life turned to hours, then days, then weeks, Kim, her palliative care nurse said it’s time to find a place that would be willing to evaluate her for surgery. We needed to move on in our fight. We were guided to Mott. There, we attended many appointments and evaluations. We were given the good, bad, and ugly of
